There is a research team comprising of nurses, trial assistant & support workers and data managers for the paediatric/ TYA oncology unit, who have wide and varied experience in oncology and research. Between them they coordinate and run the research and clinical trials on the unit & they visit the clinical areas every day. They may come and see you when you are on the ward or in the clinic to talk to you about a study or trial that may be relevant to your child’s treatment and will be happy to answer any questions you may have.
If you are approached and asked if you would like your child to take part in one or more of the trials, you will be given all the necessary information and your consent would be entirely voluntary. You are free to refuse to take part, and this will not affect your child’s care in anyway.
If you participate in a trial you will be spoken to in detail before you make a decision. You will be kept up to date during the study and your child will be monitored closely both during and afterwards.