Children's Primary Ciliary Dyskinesia service
The North of England Primary Ciliary Dyskinesia Management Team
The Primary Ciliary Dyskinesia (PCD) Team work in partnership with Bradford Teaching Hospitals NHS Foundation Trust.
PCD is an inherited, relatively rare condition of abnormality of the cilia (microscopic hairs which beat within the airways moving secretions along the respiratory tract). Due to this abnormality, patients may struggle with clearing their airways and maybe helped with medication and physiotherapy to avoid infections and lung damage. It is important that we work with patients and their parents to prevent and treat infections, clear their secretions effectively, allowing them to carry on all of the normal parts of their lives.
We see patients in various settings:
- in an outpatient clinic
- in their home environment
- in school
The PCD Team offer:
- physiotherapy advice including use of equipment and techniques
- advice on the patient’s condition and understanding of PCD
- support to parents of PCD patients and we work alongside you to support your child
We work with our young people with PCD, from high school age, through a process of transition using the Ready, Steady, Go documentation. This helps the young person to develop a better understanding of their condition and how to look after themselves, building confidence and preparing them for being more independent in adulthood.
We provide additional support in all of our regional and local clinics and work alongside our colleagues in Leeds, Bradford, Sheffield, Hull, Middlesborough, Newcastle, Manchester and Liverpool. We currently have over 150 children to whom we review and visit regularly.
You can find further information on PCD by visiting the PCD Family Support website - www.pcdsupport.org.uk
We are in the process of producing a child friendly leaflet about PCD. This will be available on this webpage soon.