The Leeds Teaching Hospitals NHS Trust

Long Term Follow Up

The Long Term Follow up Service is specifically for people who have finished their cancer treatments and do not need close monitoring for disease recurrence; this is usually from about 5 years from finishing treatment for the following:

  • Cancer or any other condition treated by a cancer specialist (oncologist or haematologist) during childhood or as a young adult.
  • A non-cancerous illness which required a bone marrow transplant during childhood or as a young adult.

Our team consist of Doctors, Specialist Nurses, Patient Coordinators and Youth Workers. Every child or young person will be allocated a Key Worker (a clinical nurse specialist) who they and their GP can contact between hospital follow-ups if necessary. View our Meet the team Webpage for further information.

What we do

  • Empower and support survivors of cancer to take control of their lives and live life to the full.
  • Offer and encourage you to complete a Holistic Needs Assessment form (which analyses physical, emotional, spiritual, mental, social and environmental needs). This helps to develop an individual care plan.
  • Provide a detailed treatment summary and care plan. This has details of the past cancer (or related) diagnosis, treatments received and any potential late effects that may be experienced.
  • Carry out surveillance for potential late effects of cancer and its treatment as well as co-ordinate the management of any of these should they arise.
  • Offer healthy lifestyle advice e.g. eating healthily, exercising regularly.
  • Offer support, information and advice during and between your clinic visits.

Long Term Follow up Guidelines

As a service, we treat all our survivors of cancer in accordance with national and international guidelines, including Children’s Cancer and Leukaemia Group (CCLG) guidelines. We are active nationally in the continued development of nursing and medical care pathways and models of care (recent work includes development and piloting of National Cancer Survivor Initiative risk-stratified care pathways and provision of evidence for commissioning cancer care).

How to find us

Individuals are seen in age-appropriate environments.

Patients under age 18 years are looked after on the Children’s Oncology and Haematology Day Unit, C floor, Clarendon Wing at Leeds General Infirmary.

For those aged 18 years and over, care is undertaken by the same team but in the Oncology Outpatients Suite, Level 1, Bexley Wing at St James’s University Hospital.

To get in touch with our team please view our Contact us Webpage.