Patient Experience Team

Patient Stories

Patient Story videos are often used within the Trust to share patient experiences with staff. This provides an opportunity for staff to learn and take action to improve services and also do more of what patients tell us works well. Patient Stories are shown in a number of different Trust forums including Trust Board and the Patient Experience Sub-Group.

Here are some of the stories that people have shared and that have been shown during the past year.

Liz and Jordan - Maternity Experience during COVID-19 - July 2020


Liz and her husband Jordan share their experience of the birth of their second baby during the COVID-19 outbreak. They had their first child at the Trust and so were able to compare their more recent experience to this.

During this period, it was not possible to invite patients into the Trust to share their story with us and the couple were therefore asked if they were happy to independently film the video at home, which they kindly accepted.

The team is exploring innovative ways to capture patient stories going forward, taking into account on-going requirements for social distancing and limiting visitors wherever possible. This is therefore also an example of testing a new way of working. 

Joyce Intro Video - March 2020

joyce from hawksworth




This patient story is the second service user, alongside Kari, to be included in the city-wide ‘How Does it Feel to Be Me?’ project. The project involves the monthly recording of individual’s health and care experience in Leeds through video and written narrative. The Trust receives the information captured regularly and is expected to use the opportunity to influence service development. 

Kari's Story: July 2019 Update - January 2020

Karis Story January 2020







This patient story has been produced by Healthwatch Leeds. It features Kari, a citizen of Leeds who has a number of health conditions. Kari described her health and care experience during July 2019 when she had used the services of a number of different providers, including the Trust. She felt there had been some good aspects to the care she had received and also that there were some areas that could have been better.

Healthwatch Leeds: Seeing Things Differently - November 2019






The patient story was a video produced by Healthwatch Leeds, featuring two women registered with a visual impairment. The video showed how difficult receiving hospital letters, attending hospital appointments and finding your way around the hospital can be for people with eyesight difficulties. Measures, such as making volunteers available, were shown to be very helpful in supporting patients. Additionally, the video explains the importance of the Trust working towards achieving the Accessible Information Standard (AIS), which is aimed at making healthcare information accessible for everyone. 

Living with Motor Neurone Disease - September 2019

motor neurone disease v2





This patient story featured a gentleman living with Motor Neurone Disease and showed how he has been supported by his partner, family, friends, carers and the NHS to do the things he enjoys and to get the most out of life. The gentleman has managed to continue to pursue his favourite pastimes including listening to music, attending concerts and spending time with people he loves, despite the constraints of the disease. The message is particularly uplifting, and has wide applicability if shown across a number of clinical areas. Click on the image to view the video.

Patient Participation of Administering Intravenous Antibiotics - July 2019

July 2019 intravenous antibiotics v2




This patient story described an improvement project that was implemented within adult cystic fibrosis (cardio-respiratory), to support patients to be a second checker for their intravenous medicines. The story showed a patient testing the process and describing the experience of taking part. Benefits from the patient’s perspective included being able to maintain their independence throughout their stay and feeling as though being involved was a way of being helpful to staff. Click on the image to view the video.

Leeds Children's Hospital Videos (Various) - May 2019

Leeds Childrens Hospital v2




Leeds Children’s Hospitals TV was created to support children and their families through treatment by providing access to stories shared by other children and families who may have been through a similar experience. One LCHTV story describes what hospital feels like for children who find they experience long periods of isolation as part of their treatment and talks about how hard this can be from the perspective of a young person. Click on the image to view the video.

#treatmewell Reasonable Adjustments at LTHT - March 2019

March 2019 treatmewell v2





This patient story explained how people with a learning disability and/or autism may experience hospital and talked about the importance of reasonable adjustments for disabled patients. Examples of reasonable adjustments that can be made across the Trust were presented by volunteers with a learning disability and/or autism at the end of the video included examples such as “give me enough time” and “speak clearly and use simple words”.

Celebrating Volunteering - January 2019

January 2018 Volunteering v2






This patient story described a number of volunteers who had supported the Trust during winter 2018.  It showcased a range of activities they had undertaken such as helping out at meal times, being a helping hand and a person for patients to speak to. The volunteers described how rewarding they had found their experiences within the hospital and the challenges they face.

Care of a Patient With Complex Needs (AMS) - November 2018  

November 2018 Care of Patient with complex needs v2






This patient story explained how the abdominal, medicine and surgery CSU had responded to the reported experience of a young woman, Becky, with complex needs who required regular admission to their wards. The patient had shared their concerns originally with Healthwatch Leeds and this story was a good example of how the Trust had collaborated with Healthwatch Leeds to ensure an improved patient outcome was achieved.

Maggie: A Valued Member of the Critical Care Team - September 2018







This patient story described a new initiative in Critical Care which involved the introduction of a volunteer and their PAT dog, Maggie, into the department.  The video showed how successful Maggie has been in providing distraction to patients and relatives in difficult situations.  Maggie has also improved morale in the department as staff enjoy the weekly visits and the difference they make to the people they are caring for.

Endoscopy Introduction: The Patient Journey - May 2018

endoscopy may 2018 




This patient story was made in response to patient feedback in the endoscopy department. Patients had described not knowing what to expect when undergoing an endoscopy and the film was developed to improve patient understanding of the endoscopy journey.  

How it feels to be...LGBT





My Story: Joanne Lancaster

joanne lancaster





Connecting the dots: Geoff Roberts

geoff roberts





Howard Beck: A Patient Story 

Improving Care After Death: Hospital Funerals

A Carer's Story: Dementia and End of Life Care