What is this project about?
In the NHS, patient data is not all stored in one place or on one system and because of the size of the NHS, this information is very difficult to bring together. This means that the data for current and former cancer patients, who are not involved in clinical trials (approximately 80% of patients), is not contributing to developments in cancer research. With more than 375,000 people in the UK newly diagnosed with cancer each year, this is a huge unutilised resource that could make a real difference to treatment and care for patients.
We plan to share the records we hold for our cancer patients with Flatiron Health UK who will process these into usable collections of anonymised data and make them available to researchers to further their work.