Useful Links
You might find some of the following support organisations helpful:
Leeds Neurosurgery website: www.leedsneurosurgery.com/
Selective Dorsal Rhizotomy (SDR): http://www.leedsneurosurgery.com/sdr
Young Epilepsy: www.youngepilepsy.org.uk
Helpline: 01342 831342
Epilepsy action: www.epilepsy.org.uk
Child Brain Injury Trust: www.childbraininjurytrust.org.uk
Helpline: 0845 6014939 (24 hour answering service)
The Encephalitis Society: www.encephalitis.info
MS Society for Children: https://www.mssociety.org.uk/what-is-ms/types-of-ms/ms-in-children
Medicines for Children: www.medicinesforchildren.org.uk
Muscular Dystrophy UK: http://www.musculardystrophyuk.org/
Treat Neuromuscular Disease: http://www.treat-nmd.eu/
SCOPE (cerebral palsy): www.scope.org.uk
STARS (reflex anoxic syncope): www.stars.org.uk
Hereditary Sensory Neuropathies: www.cmt.org.uk
yaware Kids (myasthenic children): www.myasthenickids.org/
Contact a Family: www.cafamily.org.uk
UK Children’s Neurological Research Campaign: www.ukcnrc.org.uk
The Stroke Association: www.stroke.org.uk
Helpline: 0845 30 33 100 or 0303 30 33 100
Different Strokes: www.differentstrokes.co.uk
Brain Tumour Research and Support across Yorkshire: www.btrs.org.uk
Levi’s star (Yorkshire Brain Tumour Charity): www.freewebs.com/levisstar/
Multiple Sclerosis Society: www.mssociety.org.uk
Helpline: 0808 800 8000
The Migraine Trust: https://www.migrainetrust.org/about-migraine/migraine-what-is-it/symptoms-and-stages/
Charity for Hydrocephalus and Spina Bifida: http://www.shinecharity.org.uk/
The Dystonia Society: http://www.dystonia.org.uk