Long term follow up clinic - Leeds Teaching Hospitals NHS Trust

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The Children’s Oncology Long Term Follow Up Clinic provides support and advice for you and your family about late effects of the treatment you have received and also advice on maintaining a healthy lifestyle.

This clinic is specifically for you if you are living beyond your treatment and have had:

cancer or any other condition treated by a doctor specialising in cancer treatments.
a blood disorder which required a bone marrow transplant.

Why should I attend Long Term Follow Up clinic?

At your clinic visit we will discuss your previous illness to help you understand what happened to you when you were younger. Support you to make good healthy life style choices including help to coordinate your healthcare. Arrange tests to look for possible late effects of your treatment.

Who are the Long Term Follow Up Team?

Doctors

The doctors are experienced in looking after children who have had cancer, bone marrow transplant or any other condition treated by a doctor specialising in cancer treatments. The doctor will be aware of any possible late effects you may experience.

The Doctor is: Dr Jess Morgan

There may also be other doctors in clinic who you may see you during your visit.

Specialist Nurses

The specialist nurses offer support, information and advice to you during your clinic visit. You can also contact the nurse between visits if you have any questions.
Please call the long term follow up team on 0113 392 2121.

When and where are the face to face clinics are held?

All clinics are held in the Children’s Haematology/Oncology Day Unit. This clinic can be found on C Floor, Clarendon Wing, Leeds General Infirmary. For telephone and video clinics you are not required to attend in person. The consultation takes place virtually.

Please note that you will be discharged if you do not attend an appointment on two consecutive occasions.

Medical (face-to-face, video, telephone) Clinics

Takes place on a Monday afternoon.

Nurse Telephone, Video Clinic

Takes place on a Monday and Tuesday lunchtime.

What will happen at your face-to-face clinic?

Your clinic visit may take up to two hours.
At each visit you will be seen by a doctor, or a nurse or both.
We will record your height, weight and blood pressure.
You will be asked to complete a form that asks about any worries you may have and any medications you are taking.
Your doctor or nurse will discuss your previous illness and treatment you had.
The doctor may examine you.
We may request other tests such as blood tests or scans.

You will be given the opportunity to speak to the Doctor or Nurse without your Parents or Carer. This is part of preparing you for moving onto the adult services at the age of 18.

Life Style Advice

We offer you information and advice to help you lead a healthier lifestyle.

This includes information on:

eating healthily
exercising regularly
sun awareness
importance of avoiding drinking alcohol
importance of safe sex
importance of avoiding illegal drugs
importance of avoiding smoking and vaping
any other issues you are worried about.

Transition

Transition is the planned and coordinated move from Children’s Oncology Long Term Follow Up to the Adult Oncology Long Term Follow Up service.

At around the age of 12 you and your Parents/Carer will be invited to a Transition Event where you will meet other young people of your age. The event will provide you with further information about Transition in Healthcare. From the age of 13 you will be enrolled on the Transition Programme as you begin your journey preparing you for independent adult healthcare when you are 18 years old.

Who can I contact between my visits?

If you have any questions or worries between your clinic visits about your previous cancer diagnosis or treatments received, you can contact your key worker who will be happy to help.