West Yorkshire Regional MS Clinic

Aims of the Service

• To provide specialist assessment for people with an established diagnosis and those with a new diagnosis of MS.
• Initiation and monitoring of new therapies and symptomatic treatments.
• To provide multi-disciplinary assessment on a single visit and continuity of care.
• To provide education and information.

The MS Team

MS Consultant Neurologists

The MS Consultant Neurologists will be able to discuss your diagnosis and answer questions you may have about your MS. They may discuss availability and suitability of MS treatments.

They work with an experienced trainee neurologist, the Specialist Registrar.

The consultants work closely with the other members of the MS team and your GP.

When they are local research trials of new treatment in MS you may be asked to consider taking part.

Some people only visit the clinic once for a particular problem. Others come on several occasions or regularly. Either way, we like to keep a register of people with MS for research and information purposes.

The MS Specialist Nurse’s

The MS Specialist Nurses’ role within the service is to provide continuing advice, information and support to you and your family/significant others from diagnosis onwards.

Within the clinic setting the nurses will provide support and advice on a number of issues related to MS, for example:

• Symptom Management
• Disease modifying therapies and follow-up
• Pregnancy
• Diet
• Exercise / relaxation / fatigue management
• Driving
• Work and employment issues
• Managing relapses
• Treatment therapies
• Complimentary therapies

The MS Nurse liaises with other Healthcare Professionals and provide a link between the hospital and community settings.

If you would like to contact or speak with an MS Specialist Nurse please telephone 0113 392 8117 or email [email protected]

MS Support Nurse

I support the MS nursing team providing advice and support to patients. I refer to other Healthcare Professionals and will signpost to other services when appropriate. I also work two days a week on the Neurology Day Case Unit and am responsible for administering Disease Modifying Treatment infusions.

Advanced MS Champion

The AMSC role was created to place an MS Specialist in areas of greatest need for patients with advanced MS. When people with MS reach a more advanced stage of their condition then they may no longer qualifying for Disease Modifying Therapy leading to a potential disconnect with their MS service. This leads them reliant on their family and friends for their care. An AMSC’s is to reconnect with those living with advanced MS, whilst addressing and co‑ordinating their complex care needs.

MS Coordinator

My role is to support the MS Nursing Team by providing administrative duties. Some of my responsibilities include, triaging patient calls and emails, validating clinic appointments and I also support the MS nurses with various projects and monthly data collection.

MS Treatment Coordinator’s

Jennie Hepton and Khadija Dambatta

The MS Treatment Programme Coordinator within the MS Team take care of the administration duties for those patients on Disease Modifying Treatments. The Treatment Coordinator’s are responsible for managing new and on going prescriptions and liaising with Home Care companies for delivery of prescription.

If you have prescription issues or delivery queries please contact the MS Treatment Coordinator’s via telephone on 0113 392 6307 / 0113 392 3353 or email [email protected]

MS Research Team

We want every patient with MS to have the opportunity to participate in MS Clinical Trials if they meet the required criteria. We are developing a distinctive, high quality research portfolio, delivering commercial and non-commercial research studies.

We realise that the future of MS care lies in the answers that research can offer.

Please contact the MS Research Team via telephone on 0113 392 5073 if you wish to discuss this further.

Useful contact numbers