You might find some of the following support organisations helpful:
Selective Dorsal Rhizotomy (SDR)
Young Epilepsy
Helpline: 01342 831342
Child Brain Injury Trust
Helpline: 0845 6014939 (24 hour answering service)
Hereditary Sensory Neuropathies
Myaware Kids (myasthenic children)
The Stroke Association
Helpline: 0845 30 33 100 or 0303 30 33 100
Brain Tumour Research and Support across Yorkshire
Multiple Sclerosis Society
Helpline: 0808 800 8000