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The Rob Burrow Centre for Motor Neurone Disease Strategy

A Centre of Care, Hope and Change

MND 3rd Nov (1 of 1)-23 (1)

Introduction

The Rob Burrow Centre for Motor Neurone Disease is the embodiment of a dream, a first-of-its-kind facility to support Motor Neurone Disease (MND) patients, their families, friends and carers, and the staff and volunteers who are with them through their journeys. The centre started as an idea from a conversation between lead clinician Dr Agam Jung and Rob Burrow CBE.

An appeal was launched by Leeds Hospitals Charity in 2021 to raise £6.8M. Inspired by Rob, his wife Lindsey and close friend Kevin Sinfield CBE, the community across West Yorkshire and beyond responded to the appeal, and just four years later The Rob Burrow Centre for Motor Neurone Disease opened at Seacroft Hospital in Leeds.

You can download the full Centre Strategy using the link below.

MND Centre Strategy 2025 (pdf)

There is also a summary version of the Strategy which you can download using the link below.

MND Centre Strategy Summary (pdf)

Our Vision

To revolutionise holistic care for patients with Motor Neurone Disease, locally and nationally, empowering patients to “Live in the Now”.

Our Mission

The four pillars supporting The Rob Burrow Centre for Motor Neurone Disease are:

  • Clinical Excellence – To deliver a world-class MND clinical service.
  • Holistic and Family-centred Care – To create an environment offering a range of holistic therapies, activities and events for patients and families living with MND.
  • Research and Innovation – To become recognised as a leader in MND research.
  • Education, Workforce Development and Empowerment – To provide recognised MND specific education, empowering our staff as leaders in the field.

The Foundations

Underpinning the pillars are four key foundations ensuring that The Rob Burrow Centre for Motor Neurone Disease will operate effectively and efficiently:

  • Patient and Public Involvement and Experience – Patients will be at the heart of everything we do.
  • Strategic Partnerships – For the centre to succeed and thrive a partnership approach is essential.
  • Environment and Experience – We will use the environment of the centre to improve the experience of all users.
  • Leadership, Management and Governance – We will ensure through governance that the highest clinical, operational, research and education standards are maintained, remaining accountable to our communities of users and supporters.

“The centre represents hope for families like ours – hope that people living with MND will have the support, dignity, and specialist care they deserve. It is a symbol of courage, compassion, and community. It’s our hope that no person living with MND faces the journey alone.”

– Lindsey Burrow, Patron, Leeds Hospitals Charity

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