The Leeds Teaching Hospitals NHS Trust

Inherited White Matter Disorders (IWMD)

The Inherited White Matter Disorders (IWMD) service is a diagnostic and management service for adults with white matter disorders

Inherited White Matter Disorders (IWMD), also known as leukodystrophies, are part of a group of genetic disorders that are a result of single gene mutations. IWMDs affect the nervous system.

In collaboration with other lead IWMD centres, LTHT will work towards the development of specialised diagnostic and disease-specific protocols with the aim of setting up a system for the management of symptoms, diagnostics, and clinical trials.

Location

  • Leeds General Infirmary (Martin Wing)
  • Leeds General Infirmary (Jubilee Wing)

Service contact details

MDT Co-ordinator (Tuesday - Friday 9am to 4pm)

Tel: 0113 3923353

Appointments

Tel: 0113 3923353

Out of hours: please leave a message and we will get back to you

LTHT Team: leedsth-tr.adult-IWMD@nhs.net

IWMD Registry Mailbox: gst-tr-iwmdr@nhs.net

Useful Links

IWMD Patient Registry: gst-tr-iwmdr@nhs.net

Support: We work in collaboration with Alex, the leukodystrophy charity (ALEX-TLC). They offer support to families affected by Leukodystrophies: Visit their website

Team

Dr Rumana Chowdhury - Neurology Consultant & IWMD Service Clinical Lead

Khadija Dambatta - IWMD Coordinator

Referrals

Please complete the referral proforma and return by email to leedsth-tr.adult-IWMD@nhs.net

How to find / contact us

Department of Neurology

F Floor, Martin Wing

Leeds General Infirmary

Great George Street

Leeds

LS1 3EX

Tel: 0113 39 23353