Introduction
The Nutrition Team that have been looking after you, while you have been in hospital, have decided that you need to have intravenous (IV) fluids or IV nutrition (known as Parenteral Nutrition – PN) when you go home.
We have designed this booklet as a training guide for you. This booklet belongs to you, and when you have completed your training, you can take it home with you. Please use this in conjunction with the other information booklets provided for you, as well as your patient passport.
We hope that this booklet will answer most of your questions, but let us know if you want more information.
Why do you need home intravenous nutrition?
IV nutrition is needed when you cannot manage to eat enough food to maintain your ideal body weight. This happens when long sections of your bowel are removed and may also be due to the large losses of fluid from a stoma. The bowel may be too short to give nutrients time to be properly absorbed, leaving you malnourished.
In some cases, the bowel that is left may be long enough to absorb the food that you eat but cannot absorb the fluids and some of the essential minerals and salts that your body needs to work properly. In these cases, you will only need IV fluids, not IV nutrition. Sometimes, we use a combination of IV fluids and nutrition.
There are many reasons why patients need home IV fluids or nutrition. The length of time that you need IV therapy can also vary. The members of the Nutrition Team will talk with the Consultant looking after you to decide how long you may require treatment. In some cases, we may not know how long you will continue IV therapy but will be reviewing your progress regularly, in our nutrition clinic.
How do we give home intravenous therapy?
Whilst you are in hospital, the lines team will insert a PICC/Hickman line. This is a tube that enters your body on the chest wall or in your arm and leads directly into one of the large veins next to your heart.
Whilst you are an inpatient, the IV nutrition or fluids will be started and will run over 24 hours. Over several days, we will reduce the duration of the infusion to 12 hours (overnight). We cannot start with a 12 hour infusion, because the body has to get used to the large volume of fluid or sugar-rich solution that is in the feed. During this time we will closely monitor your bloods and glucose levels. This is to make sure that your body is coping with the infusion, and that the sugar levels in your blood are okay.
PICC – Peripherally Inserted Central Catheter
PICC
(Peripherally Inserted Central Catheter)
Hickman Line
Practical Guidelines for Looking After Your PN/Fluid Therapy
The following guidelines will help you learn the practical skills needed to give yourself IV therapy at home. These guidelines can act as a reminder when you have gone home if you are unsure about your home therapy.
The guidelines will help you with:
- Hand Hygiene
- Connection of the infusion to your PICC/Hickman line.
- Disconnection of the infusion from your PICC/Hickman line.
- Changing the dressing and bionector on your PICC/Hickman line.
- How to change the biopatch (Hickman lines only)
Staff will train you on the procedures relevant to you during your inpatient stay. This may be all procedures or just some of the procedures. The Clinical Nurse Specialists on the Nutrition Team are responsible for your training and will assess your competency when you are ready.
We will help you work through these skills at your own pace. If you have any questions, please ask as we go along.
Aseptic Non-Touch Technique – ANTT
We will teach you a technique called the Aseptic Non-Touch Technique, or ANTT
This has four elements which can then be applied to anything you do related to the PICC/Hickman line and the IV fluids.
Hand Hygiene
Hand washing is one of the most important but simplest procedures for the prevention of infection.
Good hand washing technique is easy to learn and effective.
Using the following 6 steps under running water will ensure no areas will be missed.
Palm to palm
Right palm over back of left, fingers interlaced, and then vice versa
Palm to palm, fingers interlaced
Back of fingers opposing palms with fingers interlaced
Rotational rubbing of thumbs enclosed by palm
Rotational rubbing backwards and forwards with fingertips of right hand
in palm of left, and vice
Connecting the PN/Fluids
Disconnecting the PN/Fluids
Changing the Needle Free Device
The needle free device placed at the end of your Hickman line should be changed every seven days unless damaged, in which case it should be changed immediately.
We recommend that this be done on the same day that you renew the dressing to the PICC/Hickman line. It should be changed when you are not connected to fluids.
To change the needle-free device:
Changing the Hickman/PICC Line Dressing & needle free device
Contact Numbers
We are here to help you! Please get in touch if you have any problems, or if you need a chat about anything to do with home therapy. Keep these numbers handy in case of emergencies.
St James’s University Hospital
Switchboard
0113 2433144
Nutrition office
Monday – Friday 8am- 4pm
0113 2068649
REMEMBER: IF YOU HAVE A PROBLEM/QUERY OUT OF HOURS, CONTACT J91 AND MAKE THEM AWARE YOU ARE A PN PATIENT. J91: 01132069191 (4pm-8am) and weekends
Support Groups
PINNT (Patients on Intravenous and Nasogastric Nutrition Therapy)
PINNT is a support organisation for people who are tube-fed. It aims to promote greater understanding of the therapies amongst patients, potential patients and the medical profession. It also aims to provide contact between patients, to try and eliminate some of the problems that come with treatment (particularly when it is carried out at home). Over the years it has not only brought together patients from all over the UK, but also doctors, nurses and other health professionals working in the field of artificial nutrition worldwide.
PINNT have information sheets available on all types of tube feeding; provide help and advice about going on holiday for those who are tube-fed, including travel and insurance. There is a small membership fee.
In addition, PINNT have a website which is intended for all nutrition patients and their carers as well as healthcare professionals and the general public.
PINNT assists its members with anything the patient feels is important. A lot of time is spent helping with benefit claims and fighting appeals. Many members will need frequent help for the rest of their lives, and PINNT provides practical assistance for their needs. This can be a great help in times of stress.
You can write for further information to:
Carolyn Wheatley,
PINNT,
P.O. Box 3126,
Christchurch,
Dorset,
BH23 2X
Tel: 01202 481 625
Fax: 01202 481 625
Or contact them via the website www.pinnt.com
Best time to telephone: 9.30am – 4.30pm (Answer phone at other times)