Useful Links
(Please note: YRGS is not responsible for compiling, updating or providing the content shown on the websites below. Thank you).
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The British Society for Genetic Medicine
BSGM is an independent professional organisation whose purpose is to support the promotion, encouragement and advancement of genetic and genomic science in clinical and research practice for the public benefit.
British Heart Foundation
The British Heart Foundation is a charity organisation in the United Kingdom. It funds research to beat heartbreak from heart and circulatory diseases and their risk factors.
Genetic Alliance UK
Genetic Alliance UK are a national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions.
https://www.geneticalliance.org.uk/
Gene People
Gene People provides expert and personally tailored information and support for anyone affected by a genetic condition, their family members, professionals, genetic condition specific support groups and the public. Their services include a free, genetic counsellor led helpline for all genetic conditions.
Huntington’s Disease Association
The Huntington's Disease Association is a charity that supports people in England and Wales affected by the genetic neurodegenerative brain condition Huntington's disease. The HDA was founded in 1986 and is based in Liverpool.
HDBuzz
HDBuzz is the first internet portal for the rapid dissemination of high-quality Huntington’s disease (HD) research news to the global community, written in plain language, by HD clinicians and scientists.
HDYO
The Huntington’s Disease Youth Organization is non-profit set up to provide support and education to young people (aged up to 35) impacted by Huntington’s disease (HD) around the world.
Macmillan Cancer Support
Macmillan Cancer Support is one of the largest British charities and provides specialist health care, information and financial support to people affected by cancer. It also looks at the social, emotional and practical impact cancer can have, and campaigns for better cancer care.
The Motor Neurone Disease Association
The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland focused on improving access to care, research and campaigning for those people living with or affected by MND.
https://www.mndassociation.org
The Polycystic Kidney Disease Charity
The PKD Charity was established in December 2000 by patients, professionals and members of families affected by PKD. Their aim is to promote health and to relieve those persons suffering from or affected by polycystic kidney disease (PKD) with a view to improving their conditions of life.
Retina UK
Retina UK support people affected by inherited progressive sight loss and invest in medical research to ensure that people can lead a fulfilling life.
UNIQUE
The UNIQUE - The Rare Chromosome Disorder Support Group is a non-profit, voluntary organisation dedicated to promoting awareness of rare chromosomal abnormalities. The organization was founded in 1984 and served as a source of support and information for anyone affected by any rare chromosome abnormality.
